|
Murderball Fundraiser
$10,000 Raised at Josh Basile
Bash
More than 150 supporters come to
screening of “Murderball” to
support paralysis research.
By Ken Millstone/The Almanac
July 27, 2005
"Josh
Basile was surrounded by knot
after knot of friends in the
lobby of Bethesda Row Cinema
Saturday.
Teenage friends — mostly girls —
from his alma mater Bullis and
other schools hugged him and
surrounded him to chat.
THEN THERE were neighbors from
River Falls, who also hugged him
and introduced their children.
Strangers shook his hand and
were quickly indistinguishable
from long-time friends.
In short, Basile was a hit, the
center of attention, exactly the
way he had been at gatherings
last year and the year before.
Except that this time he is in
his wheelchair.
The event was a kickoff
fund-raiser for Determined2Heal,
the organization Basile and his
family started this year in the
aftermath of a beach accident
that paralyzed him Aug. 1, 2004.
The group will promote beach
safety awareness, support new
victims of paralysis, and
support spinal cord injury
research.
Determined2Heal sold more than
150 tickets for a screening of
the film “Murderball,” a
documentary about quadriplegics
playing wheelchair rugby in the
Paralympics, raising more than
$10,000.
In addition to those that signed
up in advance for the event,
more than 30 people bought
tickets as walk-ins, and
numerous others spotted the
Determined2Heal table, learned
about the organization and made
a donation on the spot, even if
they weren’t going to see the
film, organizers said.
“We’ve gotten a lot of people
who have places at the beach …
who want a lot more information
and we’ve been giving it out
like crazy. They want to get
involved with the beach safety
aspect of it, the lobbying
aspect of it,” said Jane
Altshuler, a former Bullis
teacher who now works full-time
with Basile and Determined2Heal.
“That’s been very exciting.”
Basile said that the quickly
planned “Murderball” event was
meant less as a full-fledged
fund-raiser than as a chance to
bring friends together and start
spreading the word about
Determined2Heal.
“We have events that are going
to be so much larger. … This was
just an event to get everybody
together, for them to see me and
see how I’ve evolved and how
I’ve adapted to this new life,”
he said. I thought we would get
like 60 people. We got over 150.
I thought we were going to raise
$2,000. We raised $10,000. I
cannot believe how warm and how
incredible this community has
been.”
“Murderball” traces the U.S.
“quad rugby” team’s fierce
rivalry with team Canada and its
coach, a former U.S. star. In a
parallel story, it follows a
recently paralyzed motorcross
cyclist’s transition to his new
life.
It’s easy to see the parallels
between Basile and the people in
"Murderball." The quad rugby
players are young, mostly in
their 20s. Basile is 19. Most of
the players were athletes before
the accidents that changed their
lives. Basile was a tennis
player at Bullis and Skidmore
College. The players are
affable, sometimes mischievous,
sometimes crude, but not dragged
down by their disabilities. Same
with Basile.
Basile loved it.
“They’re not taking their
disability as something
negative,” he said of the
athletes. “They’re being exactly
who they would be if they
weren’t in this wheelchair.”
In one scene in the film, Keith
Cavill, recently paralyzed and
not part of the quad rugby team,
is surrounded by his therapists
as he leaves the hospital to
return home. They give Cavill a
card and he struggles to tear
open the envelope. It is an
awkward moment, but he works
through it, opening the card
himself.
“I understand exactly where he
is,” Basile said. “I’m proud of
what he did. He didn’t ask for
help. He’s gained his
independence and that’s what you
need to do. Any little thing
that you can do, there’s no
reason to have somebody do it
for you. It’s all about
independence.”
Members of Basile’s own medical
team from Johns Hopkins
University’s Kennedy Kreiger
Institute were on hand for the
event Saturday. Among them were
Dr. John McDonald, the spinal
cord injury researcher who also
treated actor Christopher Reeve,
along with Basile’s
acupuncturist and his therapist
Kim Myers.
Myers said she loved the film
and was impressed by the number
of people the event drew in such
a short time. But knowing Basile,
she wasn’t surprised.
“He’s got a great attitude. I
call him the mayor because he
just talks to everybody. Every
kid, every new patient that
comes in the room,” Myers said.
“He knows more about the therapy
than the therapists do half the
time. He tells everybody how it
works.”
McDonald and Kennedy Kreiger
advocate exercise-based
restorative therapy, designed to
reeducate damaged nerves to
conduct signals to paralyzed
limbs.
“Most doctors only treat above
the lesion. Doctor McDonald says
work them below it,” Myers said.
“So we’re treating muscles and
body parts that people don’t
think they’ll ever move. And
we’re seeing movement.”
Myers, McDonald, and Basile’s
family were among the few people
at the event Saturday that knew
the big news — Basile had moved
his right toe two days earlier.
“I just wiggled it once and
said, ‘Oh no, this is not
happening,’” Basile said. “I was
like, ‘Jane [Altshuler] come
over here.’ Tell me to wiggle my
big toe.”
Basile moved it 35 times that
day, five times the next day and
four times the following day. He
said that the number declines
because muscles that have been
out of use become overwhelmingly
fatigued when they are used
again, but that he’s resting it
now and will practice moving it
again in coming weeks. He has
also begun to have movement in
his upper quad and hip flexor.
“It was unbelievable. I can’t
even tell you. That’s what true
joy is, to see something like
that,” Altshuler said.
Moments like that one are
exactly what keep Basile and
Determined2Heal moving forward.
“You really appreciate
everything that you lost. You
realize how fragile life is and
how important every little
aspect of life is,” Basile said.
Next week, he’ll travel to
Hawaii and take a paraplegic out
to swim with dolphins, a
launching event for Adventure on
Wheels, a component of his
organization similar to the Make
a Wish Foundation, but geared
towards spinal cord injury
patients.
It’s one of dozens of ideas that
Basile has brewing, and the
fund-raiser Saturday will help
support.
“I couldn’t imagine it being
better. So many people came out.
Such warm hearts. It’s just
awesome,” Basile said." |